I've been pretty radio silent the last while. It's not because I have nothing to say, or that not much is going on. It's the opposite.
Our life right now has been overwhelming. Our priorities have shifted, and writing has been taking a backseat. Most everything, really, has taken a backseat and the car has shifted into crisis mode.
You see, we've been fighting for a long time to get funding, to get professionals to see our son as he is, to have some semblance of rest, to understand what's going on in his brain and how it affects his body, to ...do so many other things.
On Monday, we had a case conference that has put us in to a quiet time. We've been told we've come to a wall. There's no door, and we can't move it. We need to simply wait for someone to build a door, or toss a rope over from the other side. ....analogy aside, the team, and us, have done all the proper things, but we've run out of options at this time in improving our situation.
It's brutal. It's heart breaking. It's....freeing. We're no longer fighting, but sitting against the wall and resting. We're not looking a head too far, we're simply here, and now. We're continuing on with the steps we've taken, and actually going backwards a little bit to see if we've missed anything in our foundational steps.
Instead of reaching and stretching ourselves too thin, we're making ourselves small, and reducing expectations. It's not easy, but it's what we have to do right now. We're not out of the war, we're regrouping and reinforcing.
All of that to say - I might be more quiet on the blog. Know I'm still around. Know I want to communicate. And, for right now, you might need to initiate.
Keeping my chin up,
XO
J
soli deo gloria
